Down Syndrome Research Foundation

1409 Sperling Avenue, Burnaby
British Columbia, Canada V5B 4J8

email: info@dsrf.org

Information for Self Advocates - Aging
Keeping well / written by Lour Marsden and Fiona Wilson. Edinburgh, UK : Down's Syndrome Scotland, 2006.

Let's talk about getting older : a booklet about getting older for adults who have a learning disability / Lou Marsden & Gill Smith. Edinburgh, UK : Down's Syndrome Scotland, 2005.

What is dementia? : a  booklet about dementia for adults who have a learning disability / written by Dianne Kerr & Mo Innes. Edinburgh, UK : Down's Syndrome Scotland, 2000.

Information for Self Advocates - Community Building
Canadian Down Syndrome Society - Forum : a website for adults with Down syndrome. There are two sections on the forum; Awesome Adults and VATTA Advocacy Talk.  Awesome Adults; you can discuss things that are important to you.  VATTA Advocacy Talk; you can learn about the VATTA program and talk about how to advocate in your community.

Down's Syndrome Association - Down 2 Earth : is a section on the Down Syndrome Association website for adults with Down syndrome. The back issues of their newsletter, Down 2 Earth, are available to download.

National Down Syndrome Society - Club NDSS : a website specifically for teenagers and adults.  The site contains a computer page, a page on healthy living, an advocacy page, a page about school & free time and a page about independence.

Information for Self Advocates - General
Down syndrome and you : a booklet for people with Down syndrome / Canadian Down Syndrome Society -- Calgary, AB: Canadian Down Syndrome Society, 2006.

Let's talk about Down's syndrome / written by Lynda Russell. Edinburgh, UK : Down's Syndrome Scotland, 2006.

Living with Down syndrome / S.J. Buckley.  Down Syndrome Issues and Information. Portsmouth, UK : Down Syndrome Educational Trust, 2000.

Information for Self Advocates - Grief/Loss
Let's talk about death : a booklet about death and funerals for adults who have a learning disability / written by Karen Watchman. Edinburgh, UK : Down's Syndrome Scotland, 2000.

Coping with loss : fact sheet / written by Lou Marsden.  Edinburgh, UK : Down's Syndrome Scotland, 2005.

Information for Self Advocates - Health
Diet, weight and exercise / written by Lou Marsden.  Edinburgh, UK : Down's Syndrome Scotland, 2006.

Health : looking after yourself / Down's Syndrome Association. London, UK : Down's Syndrome Association, 2002.  

Information for Self Advocates - Health - Puberty

Let’s talk about periods : a booklet about growing up for girls who have a learning disability / Lynda Russell.  Edinburgh, UK : Down's Syndrome Scotland, 2005.

Let's talk about puberty / written by Lois Marsden. Edinburgh, UK : Down's Syndrome Scotland, 2005.