Do you believe in magic? Want to know more about DSRF? We would be happy to give you a tour of our unique facility. Please contact Dawn to set up an individualized or group tour....more
DSRF - Making Dreams Happen
The Down Syndrome Research Foundation is proud to present our brand new promotional video aimed at raising awareness for our organization as well as providing information on our various programs for individuals with developmental disabilities of all ages....more
Waiting for a Snowflake to Land on my Tongue
DSRF Receives Kiwanis Club Grant (2013)
Resources for New Parents
Information on Down Syndrome for New Parents
Available on our web site is a section, Information for New Parents, which includes a list of Frequently Asked Questions (FAQ) and basic medical facts.
The Down's Syndrome Association in the UK has produced the brochure "Down's Syndrome - a new parents guide". The booklet provides information for new parents and answers the most common questions that parents ask regarding their infants.
The Down's Syndrome Association has also produced a booklet available online. People with Down's syndrome - your questions answered / Susannah Seyman. Down's Syndrome Association. -- London, UK: Down's Syndrome Association, 2007.
The Canadian Down Syndrome Society has an information section on their web site of useful informaton for new parents.
Down's Syndrome Scotland has produced a booklet Ages and Stages of Down's Syndrome that outlines the health and developmental milestones of those with Down syndrome throughout their lives.
Riverbend Down Syndrome Parent Support Group is an excellent resource of information for families. Topics of interest for new parents include early intervention and developmental milestones.
Down syndrome - from Wikipedia
Parental Support - Groups, Online Blogs, Listservs
Canadian parent support groups - to find if there is a parent group in your area of the country please consult the Support Group page of the Canadian Down Syndrome Society website.
An online group, specific to British Columbia, is the BC Down Syndrome Connection. Its aim is to connect parents or caregivers within the province of BC to discuss funding issues, respite benefits and additional services. To join the group email either Rosalie Newell-Wagner (firstname.lastname@example.org) or Katrina Bosch (email@example.com).
The Canadian Down Syndrome Society (CDSS) website offers the CDSS Online Community page. This page provides parents the opportunity to share information, to seek advice, to celebrate and to "chat" about Down syndrome through on their Forum and their Blog.
Other groups and blogs of interest include: Down Syndrome Canadian Parents, Blog for Down Syndrome, Blogs about: Down Syndrome, Down Syndrome Blogs, Chewing the Fat (topic : disabilities - by Dave Hingsburger)
Down Syndrome : Health Issues, a website designed and maintained by Dr. Len Leshin, has an extensive list of US and international organizations and parent support groups. Also listed are numerous online groups, blogs, clubs and forums. Click HERE to review the resource list.
The longest running newsgroup on the web for the Down syndrome community is DOWN-SYNatLISTSERV.NODAK.EDU. Instructions on how to join this newsgroup can be found on their website.
Resources - Books & DVD
Babies with Down syndrome : a new parents guide / edited by Susan J. Skallerup -- Bethesda, MD : Woodbine House, 2008.
Down Syndrome: The First 18 Months [dvd] / written, produced and directed by Will Schermerhorn -- Vienna, VA: Blueberry Shoes Productions, 2003.
Gifts : mothers reflect on how children with Down syndrome enrich their lives / edited by Kathryn Lynard Soper – Bethesda, MD : Woodbine House, 2007
Different dads : fathers’ stories of parenting disabled children / edited by Jill Harrions, Matthew Henderson and Rob Leonard – London , UK : Jessica Kingsley, 2007
More than a mom : living a full and balanced life when your child has special needs / by Amy Baskin and Heather Fawcett -- Baltimore, MD : Woodbine House, 2006.
Adventures in the mainstream : coming of age with Down syndrome / by Greg Palmer -- Bethesda, MD: Woodbine House, 2005.
The memory keeper's daughter / Kim Edwards -- New York, NY: Viking, 2005. [FICTION].