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| Information on Down Syndrome Contact Us
Down Syndrome Research Foundation 1409 Sperling Avenue, Burnaby
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 Conference on Developmental Disabilities
 The Centre for Specialized Learning (CSL)
| Medical and Health Information
Health Care - Adults Clinicians' guide to physical health problems of older adults with Down syndrome / Robyn A. Wallace, Arthur J. Dalton. Journal on Developmental Disabilities 2006 Spring;12(1)suppl 1: 1-91. Health care management of adults with Down syndrome / David S. Smith. American Family Physician 2001 Sep;64(6):1031-38. Medical management of the adult patient with Down syndrome / Ray Galley. Journal of the American Academy of Physician Assistants 2005 Apr:18(4):45-52. Part II: clinical practice guidelines for adolescents and young adults with Down syndrome : 12 to 21 years / Susan N. Van Cleve, Sheila Cannon & William I Cohen. Journal of Pediatric Health Care 2006 May-Jun;20(3):198-205. Health Care - Adults - Alzheimer Disease Down's syndrome and Alzheimer's disease : a guide for parents and carers / Tony Holland. London, UK : Down's Syndrome Association, 2004. Health Care - Children Down Syndrome: Health Issues by Dr. Len Leshin. An excellent web site on the pediatric medical issues in Down syndrome. The Down Syndrome Preventive Medical Check List was produced by the Down Syndrome Medical Interest Group. It provides a checklist of additional tests and evaluations recommended specifically for children and adults with Down syndrome. The checklists cover Birth to Age 12 Years and 13 Years to Adulthood. These checklists are to accompany the above DSMIG health care guidelines. The Down Syndrome Research Foundation produced a brochure in 2005 Changing Lives : Down Syndrome & the Health Care Professional that is an abbreviated format of the 1999 Health Care Guidelines listed above. Growth charts for children with Down syndrome produced by Greg Richards includes two sections; Growth charts for children with Down syndrome and Head circumference charts for children with Down syndrome. Health care guidelines for individuals with Down syndrome : 1999 revision / edited by William I. Cohen for the Down Syndrome Medical Interest Group (DSMIG). Down Syndrome Quarterly 1999 Sep 4(2) : 1-15. Part 1: clinical practice guidelines for children with Down syndrome from birth to 12 years / Susan N. Van Cleve & William I Cohen. Journal of Pediatric Health Care 2006 Jan-Feb;20(1):47-54. Primary care of infants and young children with Down syndrome / Rebecca B. Saenz. American Family Physician 1999 Jan 15;59(2):381-90, 392, 395-6.
Health Records Family and physician management plan summary for children and adolescents with Down syndrome. In: The Physician's guide to caring for children with disabilities and chronic conditions / edited by Robert E. Nickel and Larry W. Desch -- Baltimore, MD: Paul H. Brookes, 2000. This template can be used to track specific health care issues of children and adolescents with Down syndrome during each visit to the doctor. It is reproduced on the University of Illinois website with permission from the publisher.
Medical Resources - Online
Down Syndrome Medical Interest Group - UK : This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. The DSMIG developed Surveillance Guidelines to set out a minimum standard of basic medical surveillance that is considered essential; cardiac disease, thyroid disorder, hearing impairment, ophthalmic problems and the appropriate monitoring of growth.
Research - PubMed Database
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