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Down Syndrome Research Foundation

1409 Sperling Avenue, Burnaby
British Columbia, Canada V5B 4J8

phone: +1 604 444 3773
fax: +1 604 431 9248

email: info@dsrf.org



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Down Syndrome Research Community

Research
Down Syndrome Education International -  based in Portsmouth, UK, the Down Syndrome Education International works to understand how developmental processes are different for people with Down syndrome and how we can best adapt support and education to take account of these differences.

Down Syndrome Research Center - based out of the Stanford University School of Medicine, the Down Syndrome Research Center is dedicated to helping people with Down syndrome by promoting awareness of research, identifying problems and treatments, and by supporting the community.

Down Syndrome Research and Treatment Foundation - based in Palo Alto, California, the mission of the Down Syndrome Research and Treatment Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with Down syndrome.

Eleanor Roosevelt Institute - based in Denver, the Eleanor Roosevelt Institute was founded in 1961 on the belief that biomedical and genetic research are the most cost-effective, long-term approaches to the eventual conquest of human afflictions like cancer, premature aging, birth defects and genetic diseases. 

National Down Syndrome Society (NDSS) - based in New York, NDSS is one of the largest non-government supporters of Down syndrome research in the world.  You will find information on the research page of the website about their scholarships and the current clinical trials underway in the US.


Research - Funding Agencies - Canada
Canadian Institutes of Health Research (CIHR) - The Canadian Institutes of Health Research (CIHR) is the Government of Canada's agency responsible for funding health research in Canada. CIHR consists of 13 "virtual" institutes, a structure that is unique in the world. These innovative institutes bring together all partners in the research process - the people who fund research, those who carry it out and those who use its results - to share ideas and focus on what Canadians need: good health and the means to prevent disease and fight it when it happens.

Human Early Learning Partnership (HELP) - an interdisciplinary research network of faculty, researchers and graduate students from British Columbia's six major universities. HELP facilitates the creation of new knowledge, and helps apply this knowledge by working directly with government and communities.

Michael Smith Foundation for Health Research - the provincial support agency for health research in British Columbia. Established in 2001, the Michael Smith Foundation for Health Research is an independent, third-party organization that works to develop BC as a leading force in health research, supporting improvements to health, health care and economic opportunity.

Natural Sciences and Engineering Research Council of Canada (NSERC)-  NSERC is a federal agency whose vision is to help make Canada a country of discoverers and innovators for the benefit of all Canadians. The agency supports some 26,500 university students and postdoctoral fellows in their advanced studies.

Social Sciences and Humanities Research Council (SSHRC) - the federal agency that promotes and supports university-based research and training in the humanities and social sciences.


Research - Funding Agencies - United States
National Institutes of Health - the primary agency of the United States government responsible for biomedical and health-related research. Composed of 27 Institutes and Centers, the NIH provides leadership and financial support to researchers in every state and throughout the world.


Research - Reports
The National Institutes of Health Down Syndrome Working Group has developed a research plan to advance understanding of Down syndrome and speed development of new treatments for the condition, the most frequent genetic cause of mild to moderate mental retardation and associated medical problems. The plan sets research goals for the next 10 years that build upon earlier research advances fostered by the National Institutes of Health.

  • Research Plan on Down Syndrome / U.S. Department of Health and Human Services (HHS) & National Institutes of Health (NIH).  Washington, DC : NIH, 2007.


 



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