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No Single Story

There is no single story which speaks the truth of Down syndrome.
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Thoughts Before Opening the First Report Card

It is that progress that matters. But I do care what the teacher thinks. I do care what the teacher sees.
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K-Day

I have long pictured the moment she walks into that classroom, wondering whether I'm going to lose it or maybe after all the worry and planning and shifting and practicing that has lead up to that 15 seconds, it'll just feel matter of fact.
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10 Lessons My Daughter Is Teaching Me

Ten years seems like a long time. A long time to be alive and learning and growing and discovering new things – and that’s just us. You’ve had a lot going on too!
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Memory

When I tell A about her birth, how will the story go? I was scared? I didn't know what to do, how to go on? How to start over? Will I tell her I had to fight to feed her for nearly 2 months with a fight so intense I forgot about Down Syndrome?
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The Party

I have been worried about this birthday party for weeks. Who should we invite? How many? Too many will overwhelm her and too few is too vulnerable to no-shows. I don't like relying on plan A. I need B, C and sometimes D. What will we do? Free for all or structured entertainment? Will anyone come? Does she have any friends? Will she have a good time? Will I? Who is this about?
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Obstructive Sleep Apnea (OSA) in Children and Adults with Down Syndrome

Sleep Disordered Breathing may be a significant problem for children, adolescents and adults with Down syndrome. Learn more.
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