Programs & Resources

Family Information Series 2018-19

DSRF is pleased to present our Family Information Series from October 2018 to June 2019.

By monitoring important health care screening, guiding appropriate behaviour for successful social interactions, incorporating knowledge about communication strengths into everyday routines, and planning for the future, we can maximize the potential for a good life for our loved ones with Down syndrome.

The Down Syndrome Research Foundation is pleased to present our Family Information Series from October 2018 to June 2019. This series will be offered on Tuesday evenings from 6:00 to 7:30, for parents and relatives of children with Down syndrome of any age, and provides an opportunity for families to meet other families while hearing from professionals who are happy to share their expertise. The sessions will take place at DSRF (1409 Sperling Avenue in Burnaby).

Please register only for the sessions that you are interested in and confirm your participation, so we can ensure that we have a full audience for each presentation. Please contact nimet@dsrf.org to register by October 9.

October 23: Dr. Aven Poynter, Pediatrician

Dr. Aven Poynter is President BC Pediatric Society, Clinical Assistant Professor Department of Pediatrics UBC, Consulting Pediatrician MCFD Surrey Child and Youth Mental Health Team. 

Preventative Health

In this presentation we will discuss important preventative health care screening related to Down syndrome and healthy development across the lifespan.

November 27: Dr. James Lee, BC Children’s Hospital, is a Clinical Assistant Professor in the Division of Neurology (primary areas of interest: epilepsy and sleep medicine)

Down Syndrome and Sleep: What You Should Know

Dr. Lee will discuss normal sleep, then common and important sleep problems in Down Syndrome, including sleep-disordered breathing and behavioural sleep problems.

January 8: Hina Mahmood M.OT, Riley Rosebush M.Sc. RSLP

Hina is an Occupational Therapist at the Down Syndrome Research Foundation. Hina received her Master of Occupational Therapy degree from the University of British Columbia and completed her Bachelor of Arts in Psychology at the Simon Fraser University.

Riley has worked as a speech-language pathologist at DSRF since 2012 providing speech and feeding therapy to people of all ages. Riley loves working with clients and their families to provide individualized support for communication and oral motor development. She has additional training in PROMPT Therapy, Talk Tools, myofunctional therapy, and breastfeeding support.

Executive Functioning: Strategies to Increase Independence in Everyday Activities

Executive functioning is a collection of abilities that allow us to take in, process and use information. Hina and Riley will discuss the components of executive functioning and how they relate to learning and success in everyday tasks. We’ll discuss how you can use supports and strategies to improve a person’s performance in planning, self-monitoring, and carrying-out tasks related to communication and functional independence.

February 12: Ken M. Kramer, Laurie Geshke; presented by PLAN Institute

Ken M. Kramer is a lawyer specialized in disability-related wills, trusts and estate planning, and Laurie Geshke is a parent with experience in trust, representation agreements, RDSP and other disability-related issues from a family-perspective.

Will, Trust and Estate Planning

Becoming well-informed about wills, trusts and estate planning is necessary to secure the financial future of your loved one with a disability. The presenters will explain how to arrange your estate, prepare a will, and the various ins and outs of setting up a trust specifically for your relative or loved-one with a disability.

April 16: Presented by PLAN Institute, presenter TBA

Registered Disability Savings Plan

The Registered Disability Savings Plan (RDSP) is a Canada-wide registered matched savings plan specific for people with disabilities. It is a unique savings program that allows savings to grow in a tax-deferred environment and provides matching federal contributions of up to 300% annually. Canada is the first country in the world to have a RDSP, which helps those living with a disability and their families save for the future.

June 11: Susan Fawcett, M.Sc. RSLP

Susan has been a Speech-Language Pathologist at  DSRF since 2003. She is in the final stages of her PhD program at the University of British Columbia, where she is studying Family-Centred Positive Behaviour Support under Dr. Joe Lucyshyn. Her dissertation project involves examining the impact of a parent training program on the behaviour of children with Down syndrome, as well as parent stress levels.

Optimizing Mental Wellness

Parents will learn signs and symptoms of some commonly co-occurring mental health issues for people with Down syndrome at each developmental stage. In addition, parents will learn tips for enhancing self-esteem and for maintaining overall good mental health for their children with DS.

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Down Syndrome Research Foundation
1409 Sperling Avenue, Burnaby
British Columbia, Canada
V5B 4J8

Fax: +1 604 431 9248
Phone: +1 604 444 3773
E-mail: info@dsrf.org