Information

Medical and Health Information

Health Care - Adults

Canadian Health Watch Table

DSRF's Physician Letter. A letter from Dr. George Capone to medical professionals, highlighting health issues common to people with Down syndrome and directing them to key Down syndrome health resources.

Advocate Medical Group (Adult Down Syndrome Center)The Adult Down Syndrome Center is a primary and specialty healthcare clinic that has served the medical and psychosocial needs of over 6,000 teens and adults with Down syndrome since 1992. Their website includes an online library of over 250 resources for people with Down syndrome, their family and caregivers, and medical professionals.

Clinicians' guide to physical health problems of older adults with Down syndrome / Robyn A. Wallace, Arthur J. Dalton. Journal on Developmental Disabilities 2006 Spring;12(1)suppl 1: 1-91.

Health care management of adults with Down syndrome / David S. Smith. American Family Physician 2001 Sep;64(6):1031-38.

Medical management of the adult patient with Down syndrome / Ray Galley. Journal of the American Academy of Physician Assistants 2005 Apr:18(4):45-52.

Part II: clinical practice guidelines for adolescents and young adults with Down syndrome : 12 to 21 years / Susan N. Van Cleve, Sheila Cannon & William I Cohen. Journal of Pediatric Health Care 2006 May-Jun;20(3):198-205.

Health Care - Adults - Alzheimer Disease

Alzheimer's disease in individuals with Down syndrome / eMedicineHealth [website], 2009.

Alzheimer's and Down syndrome / National Down Syndrome Society [website], 2009.

Down's syndrome and Alzheimer's disease : a guide for parents and carers / Tony Holland. London, UK : Down's Syndrome Association, 2004.

Is it Alzheimer's Disease? The newsletter of the National Down Syndrome Congress. Down Syndrome News, Vol. 27, No. 5, 2011.

NTG-EDSD (click here for more information)

NDSS Caregivers Guide

Health Care - Children

DSRF's Physician Letter. A letter from Dr. George Capone to medical professionals, highlighting health issues common to people with Down syndrome and directing them to key Down syndrome health resources.

Health Supervision for Children with Down Syndrome (updated July 25, 2011), published by The American Academy of Pediatrics; click here for more information.

Canadian Health Watch Table

Down syndrome / Harold Chen. eMedicine [online] 2007 Aug 13;24p. An overview of the genetic and medical issues in early childhood.

Down Syndrome: Health Issues by Dr. Len Leshin. An excellent web site on the pediatric medical issues in Down syndrome.

Growth charts for children with Down syndrome.

Part 1: clinical practice guidelines for children with Down syndrome from birth to 12 years / Susan N. Van Cleve & William I Cohen. Journal of Pediatric Health Care 2006 Jan-Feb;20(1):47-54.

Primary care of infants and young children with Down syndrome / Rebecca B. Saenz. American Family Physician 1999 Jan 15;59(2):381-90, 392, 395-6.

Dental Care for Individuals with Down Syndrome

Dental Care Guidance for Caregivers of Patients with Down Syndrome, by Dentably

Health Records

The Canadian Down Syndrome Society has produced a Personal Health Record brochure designed for older teens and adults. The brochure is written for those with Down syndrome to keep track of their personal health information. The brochure includes a section for personal health information, a section for health care professionals and a section for personal stories.

Family and physician management plan summary for children and adolescents with Down syndrome. In: The Physician's guide to caring for children with disabilities and chronic conditions / edited by Robert E. Nickel and Larry W. Desch -- Baltimore, MD: Paul H. Brookes, 2000. This template can be used to track specific health care issues of children and adolescents with Down syndrome during each visit to the doctor. It is reproduced on the University of Illinois website with permission from the publisher.

Medical Resources - Online

The Down's Syndrome Association in the United Kingdom has numerous booklets on specific medical topics. Some of the titles in the series are listed below. For a full list of health care topics available please click, HERE.

Down Syndrome Medical Interest Group - UK: This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. The DSMIG developed Surveillance Guidelines to set out a minimum standard of basic medical surveillance that is considered essential; cardiac disease, thyroid disorder, hearing impairment, ophthalmic problems and the appropriate monitoring of growth.

Down Syndrome Medical Interest Group - USA: Features the latest publications from NLM/PubMed and WebMD News.

Research - PubMed Database

PubMed, from the US National Library of Medicine, is the best free source for citations to medical articles published in peer-reviewed medical journals.

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Down Syndrome Resource Foundation
1409 Sperling Avenue, Burnaby
British Columbia, Canada
V5B 4J8

Fax: +1 604 431 9248
Phone: +1 604 444 3773
E-mail: info@dsrf.org
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